Thursday , January 21 2021

Guillain-Barre Syndrome: "Cold Stole My Smile"



Aiša with her daughter AuroraImage copyright
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Aišš smile was taken by a very rare disease

Nearly ten years after I learned to smile again, my new mom surprised her for the second time; all because of the cold.

The face of Aswan Hancoka is partially paralyzed as a result of Guillain-Barre syndrome (GBS).

GBS is believed to appear when something is wrong with the body's immune system after the infection.

Porthcawl, a 20-year-old, hopes for an understanding of the situation that affects only 50 people in Wales every year.

She took over ten years to smile again after she was first in the top three.

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"On both occasions I only had a normal plain, the cold of the base and the cold left, and apparently when it goes, you don't expect anything else," she said.

"But after the cold disappeared, my legs were needles and needles.

"I tried to lift my legs, I tried to leave it, tried everything I thought. All day spikes and needles worsened and worsened."

In April 2018, she woke up early, unable to move her legs. Fearing that GBS was surprised again, her parents took her to the hospital.

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She was sleeping for about a month

"I remember a person who checked me, saying that the disease was rare, it is even rarer if it gets twice," said Aisha.

Tests were made and paralysis spreads the body of Aichi until she could breathe independently.

"They lie to me," she said. "I'm not sure how long it was. I think it was a month."

About a quarter of people receiving GBS come into intensive care.

"We've known about this disease for at least 100 years, but we don't really understand what causes it," said Dr. Richard Self, a leading intensive care consultant at Wales Princess Hospital in Bridgend.


What is Guillain-Barre Syndrome?

  • It is a very rare and serious condition that affects the nerves.
  • It mainly affects the feet, hands and limbs, causing problems such as numbness, weakness and pain.
  • Symptoms include numbness and needles and needles that start from the legs and arms before spreading on the arms and legs. You may also have muscle weakness, pain and problems with balance and coordination. In severe cases, you may have difficulty moving, walking, breathing and swallowing.
  • About one in 20 cases is fatal.
  • It can be caused by infection, in very rare cases – vaccination, surgery, medical procedure or injury
  • Some people do not have complete recovery, and they have long-term problems, such as inability to walk without help, hand, foot or face weakness, numbness, pain or tingling or burning sensation, balance and coordination. problems and extreme fatigue.

Source: NHS UK


"Most people have previously experienced a viral infection or maybe some gastroenteritis, some diarrhea, and then it thought it could cause immune disorders when the body attacks the nerves.

"Most people will get better, unfortunately, about a quarter of the people suffering from this disease do not get a better position and can lead to long-term weakness, and all the experience associated with this disease also has long-term psychological consequences."

When she woke up, Achish couldn't speak, but when she worked with a speech and language therapist she learned to communicate by picking pictures of things she wanted to use with her eyes.

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She just started to regain her smile when the disease struck again

After all, she managed to return home with her partner Luke and her daughter Auror, then for nine months.

However, she is still very weak and still suffers from irregular spikes and needles and pain in her legs, feet and hands. She still has a smile.

"My body is much weaker"

"It affects me in various ways," she said. "My whole body is much weaker. I will fight to raise the main things in most days.

"Usually I could walk with a good distance. But now I can walk to the end of the street and for a few days I'll be absolutely conscious."

Now she has set a goal to create a support group for people who have suffered from general budget support and run a marathon one day.

"There's a lot of thoughts going on your head, and as long as it is, you don't understand it," she said.

"If you knew someone with it or someone with the same experience as you, I think these thoughts would be much smaller."


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