Sunday , February 28 2021

Child fights brain condition after "Devil's Horns" after surgery (PHOTOS) – RT World News



A child born with an extremely rare condition has a form of skull after the operation, such as a devil's horn, to reduce the pressure on his brain.

Filipino Soline, a 22-month-old child from the Philippines, was born with a condition called chiranthenphase, which meant that he had a small brain and a bone filled with fluid.

In March, Clyne was given an operation to relieve pressure on his brain, however, due to complications with the operation, his skull collapsed in places where his brain was not formed. The result was a false skull with distinct ridges that resembled the devils' horns.

Since then, the condition has become more pronounced, and now Clyne needs to improve surgery at the Philippine Children's Medical Center in Pasig to rebuild his skull shape. Clyne's state of health is severely affected by his only mother Justine Gatarin, 21, who says she worries that he is too weak to survive in another operation.

"Now, I do not want to continue it because I'm afraid my baby is still not strong enough, "Said Gatarin Daily Mail."It is therefore difficult for me to make a decision. If we do not, his head will look like the rest of his life. "

"Some people say that his head resembles the horns of the devil, but we have no doubt that he is an angel. It damages my heart to see their suffering, "She added.

Hydranencephalin is an extremely rare condition that develops during pregnancy and prevents full development of the baby's brain, and also causes the head to grow to a larger size. An incurable condition can cause disability, intellectual problems, convulsions, and visual disturbances. Clyne already needs help in the breath and feed through the tube.

Clyne and his mother's family and friends are using social media to increase the necessary funds for the baby's medical expenses. Justine said that the family had sold most of his property to pay for surgery, but his constant medical care was expensive.

Read more: World's first human head transplant "inevitable" – Italian surgeon

"We sold almost everything we owned to have enough money for the operation. But even after surgery, we need to go back to the hospital on a regular basis," she said.

"Diarrhea in the neck, which allows him to breathe, should be replaced every six months. I am sad to see my child suffer the same way. "

Justine says she's hoping that Clyne will live like a teenager, because in the past, there have been other children born with this condition. It is not unusual that those born with hydrarencephalitis live up to their adulthood – in fact, most of the dead in the womb or in months after birth. Although the exact causes of hydrenergic events are not known, it is considered to be an inherited disorder, according to the National Organization of Orphan Diseases.

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