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Ottawa spends $ 1.4 million on chronic fatigue



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The announcement was scheduled for Thursday afternoon at noon CHU Sainte-Justine in Montreal by Federal Minister for Health Ginette Petitpa Taylor and researcher Alain Moreau, entrusted with the direction of the network.

It is estimated that more than 500,000 Canadians, including about 70,000 Quebeckers, suffer from myalgia encephalomyelitis.

<q data-attributes = "{" lang ": {" value ":" fr "," label ":" french "}," value ": {" html ":" I would tell you and several colleagues would agree, that myalgia encephalomyelitis is probably the 21st century medical puzzlecentury "," text ":" I would tell you and many colleagues would agree that myalgia encephalomyelitis is probably the 21st century medical puzzle "}}" lang = "en">I would say, and many colleagues would agree, that myalgia encephalomyelitis is probably the 21st century medical puzzlesaid Mero.

Although not a rare disease, one of the reasons for our lack of progress is the fact that too few researchers are interested in it and the lack of funding.

Alain Moreau, researcher at CHU Sainte-Justine

On the other hand, he continues, several researchers from Quebec and Canada has the extraordinary capabilities and expertise, and the funding just awarded by the Canadian Institute for Health Research to establish this interdisciplinary and collaborative network will begin to attract other researchers.

Not only will this leave you with a disease map, at least a map of Canada, but it will also make people realize that they may have the knowledge and knowledge they need to get started. together and try to demystify and decipher the disease, he said.

There are only three clinics in Canada that specialize in treating patients with myalgia encephalomyelitis or related conditions such as fibromyalgia or environmental sensitivity in Vancouver, Toronto and Halifax.

As this disease is a scientific and medical challenge, we need to organize a collaborative research network not only in Canada but also in the rest of the world to address these complex issues alone, despite human competencies and skills. Not the only way to get solutions quickly is because the people who suffer from it can no longer waitsaid Mero.

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As tired as a marathon runner

In adults, myalgia encephalomyelitis is characterized by unexplained fatigue of more than six months, joint and muscle pain, headache, depression when standing up, and poor quality of sleep. It's a … debilitating disease which affects about 60% of women, and that happens in adults between the ages of 30 and 40, Alain Moreau said.

The disease also occurs in children, especially adolescents, but it is a little more difficult to diagnose as there are all kinds of diseases that occur in the pediatric population.

In many cases, patients are sentenced to stay at home and in some cases, even in the most common form, to be unable to leave the bed.said Moreau.

This deficiency has no recovery. In fact, when we look at certain biomarkers, we see that […] patients have the same markers as an athlete who has just run a marathon. It's as if their system is on the ceiling all the time, making the smallest effort insurmountable.

Alain Moreau, researcher at CHU Sainte-Justine
In the laboratory of Alain Moreau.

Researcher Alain Moreau is one of the only Quebecers interested in myalgic encephalomyelitis.

Photo: Radio-Canada / Francois Genest

The default diagnosis of myalgia encephalomyelitis can take many years if there are no clinical tests and biomarkers that can truly characterize the disease.

Researchers recently discovered that myalgia encephalomyelitis may not be a single disease. We would rather talk about spectrum; Five subgroups of patients with different symptoms have been identified and the disease may have different causes or mechanisms.

Therefore, it is important to conduct research to better identify patients and to have more targeted, personalized approaches to at least initially alleviate major symptoms and then hope to heal the disease on a horizon that may be slightly further than expected.explained Mr Moreo.

Many patients develop the disease after viral infection, bacterial infection, exposure to toxins, or excessive stress, mental or physical condition.

Individual genes associated with genetic predisposition have also been identified. The effects of the environment itself, so-called epigenetics, are increasingly being studied. Medicine also understands that there is a defect in energy metabolism and immune system dysfunction.

<q data-attributes = "{" lang ": {" value ":" fr "," label ":" french "}," value ": {" html ":" Several diseases have their own peculiarities but do not have " this disease has not been given a specialty because it has often been linked to people who might have more mental disorders, concluded Dr.Moreau. There is no longer any doubt that this is a real disease. "," Text ":" Several illnesses have their own peculiarity, but there is no specialty that applies to the disease, as she has often been associated with people who may have more psychiatric disorders, concluded Dr. Moreau. There is no doubt that it is a real disease. "}}" Lang = "en">Many diseases have their own peculiarities, but there is no specialty associated with the disease, as it has often been associated with people who may be more mentally ill, Mr Moreau concluded. There is no longer any doubt that it is a real disease.

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